Yesterday was a day and a half. All around Lainey did incredible and responded well to everything she was given. We left the house at 7:30am and Lainey went without food and drink until her MRI at 10:30. This child is one of a kind. She didn't whine, fuss, ask for anything. She was great. Our pastor and his wife came down for support and we were so grateful. It was wonderful having them there. When they called her back for her MRI I know this would be the hardest part of the day. I didn't know if they would sedate her with an IV or medicine. It was so much better than I ever imagined. They let me give her the medication through a dropper and took it great. They turned the light down in our room and let me rock her until the medication kicked in. We knew it would take a while, but after 7 min she was asleep. She never fought it but she just asked for brother about 10 times or so. At that point we laid her down on the table for her exam and prayed over her and left. Her nurse was fantastic. She gave us our time and I never once felt rushed. We were told her exam would take 1hr15min, so the waiting game began. We talked with our pastor for some time and tried to pass the time quickly. Before we knew it she was ready and our nurse wanted us to be the first people she saw when she woke. They brought her to the door of the waiting area and we held her immediately. As she woke up she said Mama and we knew she was fine. She then said Juice, so we gave her something to drink and she quickly went back to sleep. Lunch progressed quickly and with her Neuro appointment at 1 we were rushed back up stairs to meet him. Lainey at that point was very awake but very "drunk" from her meds. She wanted to walk and play but physically was unable. We felt so sorry for her. Meeting with the Surgeon was very interesting. They were reading the mri in front of us and still very up in the air about the growth on her head. He was very sure though that the growth did not cross over the skull which is great news! The radiologist called during our appointment and seemed to think it was a sinus pericranii. After looking at all the pictures the Neuro surgeon seemed to be convinced as well. We are very comfortable with him and the other Doc we have seen for her head. All in all this was much better news than it could have been. We have had time to soak this in and the utter exhaustion has worn off from yesterday. Dr Powers would like to remove the growth through minor surgery before she gets older. He thinks it will be in our best interest to have this done for safty reasons since her growth could possibly be connected to the main vein in her brain. Another appointment is scheduled for October to reevaluate the situation and to schedule the surgery. Michal and I are hoping to get this moved up to this summer. So has far has her little head goes, she is going to be ok. We are so thankful for the MRi and the questions it answered. Lainey is doing great this morning. You wouldn't think anything has happened yesterday. She slept good last night and is full of energy. We will keep you updated as far has surgery dates and updates. Thank you all for your prayers and calls. We are so grateful for friends like you that love and support us.
we rested in these verses yesterday;
"Blessed is the man who preserves under trial, because when he has stood the test, he will recieve the crown of life that God has promised to those who love him." James 1:12
Also, Psalm 91 and Isaih 43
With Love,
Casey
Wednesday, March 17, 2010
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Thanks for writing the update - I've been praying for your whole family.
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